Resource Center
As a bleeding disorder patient or caregiver, there are many resources available to you. A partial list of online resources, information and support channels are provided on this site. Please consult with your physician or healthcare provider for additional information and resources. Coram also offers consumer resources, including a consumer conference call series and therapy-specific literature.
Explore the links below to discover valuable information for you or your child.
College Scholarship Program
Coram Hemophilia Services established the Together Forward Scholarship Program to provide opportunities to pursue higher education for members of the hemophilia and related bleeding disorders community who plan to earn an undergraduate education at a four year college or university. Click here to learn more.
Community Conference Calls
Coram's Bleeding Disorders Community Conference Calls* are a great way for you to share, listen and learn with others in the bleeding disorders community. To find out more click here.
School Preparedness Program
Coram Hemophilia Services' School Preparedness Program helps parents of children with hemophilia set the stage for a safe, happy and rewarding educational experience. To request a Coram Preparendess Kit, or for more information on how to prepare for school, click here.
Summer Camps
Coram is proud to support local hemophilia summer camps. Click here to find out more or to find camps located near you.
Great Escapes™ Travel Program
Great Escapes is a national program designed to help you travel comfortably and safely, whether it is for a trip across the country or across the globe. Click here for tips on traveling with hemophilia.
Your Infusion Therapy
Coram is a recognized leader in continuous infusion factor therapy, and is one of the few providers in the country with the appropriate staffing and experience to safely and effectively administer continuous infusion at home. Click here to learn more about your infusion therapy.
Your Health
Your health is important to us! This section offers multiple resources that can teach you how to stay healthy and continue to move forward in all you do. Click here to view this additional resources.
Transition by Age
The Transitions by Age guidelines were approved by the Medical and Scientific Advisory Council (MASAC) of the National Hemophilia Foundation (NHF), and presented to the NHF Board of Directors. These guidelines were developed by a multidisciplinary task force of nurses, psychosocial professionals and physical therapists. They are intended to be used by hemophilia treatment center (HTC) staff in conjunction with patients and their caregivers. Click here to view the age group list appropriate for you or your child.
Preparing for Disaster
Disasters can strike anywhere and at any time. The next time disaster strikes, you may not have much time to act. The steps listed in this section can help you prepare now for a sudden emergency in order to greatly improve your and your family's chances of survival and recovery. Click here to few these steps and and other emergency tips.
Links
The following information is a partial list of resources and organizations that may be of interest to you and your family. Click here to view these resources.