Products and Supplies
Through Coram Hemophilia Services, patients have access to all clotting factor products and available assay sizes, infusion supplies, pumps and related ancillaries – plus safety and convenience items such as helmets, knee pads and travel cases. Products and supplies are shipped overnight in specially-packed boxes to ensure safe handling, temperature control and confidentiality. As one of the largest purchasers of clotting factor in the country, Coram maintains priority access to factor products, even during times of shortage.
Coram pharmacists are specially trained in hemophilia and von Willebrand medications and stay up-to-date with the latest product advances, administration devices and infusion pumps. Coram pharmacists adhere to the strictest assay management guidelines (within 2% of the prescribed dose) to eliminate waste and contain costs. In addition, all clotting factor from Coram is delivered to patients in innovative "unit dose" packaging to avoid dosing errors that can lead to sub-therapeutic (ineffective) or supra-therapeutic (wasteful) factor levels.
For patients who are younger or newly diagnosed, are learning to self-infuse, unable to self-infuse, or who have more severe forms of a bleeding disorder, nursing services may be needed to support home infusion. If a nurse is required for any reason, Coram is ready to respond. As a core therapy of Coram, Inc., Coram Hemophilia Services has a staff of highly skilled home infusion nurses nationwide through our network of 80 nursing/pharmacy service centers, ensuring consistent and coordinated quality care. All Coram infusion nurses have specialized training in bleeding disorders and the administration of factor products.
For people with bleeding disorders, being overweight increases the risk of developing joint disease and range-of-motion limitations. Moreover, excess body weight leads to higher dosing of clotting factor and, ultimately, higher costs to the individual and insurance plan. Exercise and a proper diet are therefore important factors in maintaining good joint health, long-term mobility and financial well-being. For patients co-afflicted with HIV/AIDS, good nutrition lays the foundation for long-term health.
At Coram, factor therapy and good nutrition go side-by-side. Every office in the Coram branch network is staffed with a licensed dietitian. With a physician's order, Coram offers patients the opportunity for one-on-one counseling on weight loss or general nutrition. In addition, Coram offers free group education sessions to local chapters and consumer groups. Contact your Coram Hemophilia Services representative for details.
Continuous Home Infusion
Continuous infusion factor replacement therapy is accepted by many physicians as the treatment of choice for patients during and after surgery, trauma or severe hemorrhage. It has also been prescribed as aggressive immune tolerance therapy for patients with high-responding inhibitors. Today, through a portable pump delivery system, the benefits of continuous infusion factor are available to patients in the comfort and convenience of home. By eliminating fluctuations in factor levels that occur with traditional bolus infusions, continuous infusion offers factor patients improved hemostasis, reduced recovery time, and the potential for significant cost savings.
Coram is a recognized leader in continuous infusion factor therapy, and is one of the few providers in the country with the appropriate staffing and experience to safely and effectively administer the infusion at home. Through its extensive branch network and staff of highly skilled nurses and pharmacists, Coram has administered more than two million units of factor continuously without any adverse reactions.
Living with a bleeding disorder involves a complex mix of clinical, emotional, financial, vocational, family and social considerations. At Coram, we believe that providing the right services, at the right time, is vital to helping patients live life to the fullest. The Coram Consumer Advocacy program provides a personal patient advocate for each individual on service. Each advocate is an experienced member of the bleeding disorders community and is available to help patients in a variety of ways, including personal and community education (including school education), insurance and reimbursement options, vocational and educational scholarship research, family and social support resources, access to industry and government financial assistance programs, and much more.
Coram Hemophilia Services bills insurance plans directly for a patient's products and services. This direct billing arrangement reduces a patient's out-of-pocket expense and ensures that patients receive the full benefit they are entitled to under their insurance plan. Moreover, Coram reimbursement specialists continually monitor insurance limits (maximum benefit caps) that might threaten a patient's continued coverage. Our reimbursement team notifies all patients when they are nearing these limits and works diligently in advance to help them obtain alternative insurance or gap coverage to prevent an interruption in service. Patients can contact their patient advocate or reimbursement specialist at any time with questions about insurance maximums or individual policy coverage.